INTERVIEWS

Alphagen 3.0 contacted a few persons who had been diagnosed, as well as families who had members who had been diagnosed with a genetic condition. This is done in the hope that it may allow other individuals suffering from similar conditions to feel seen and, perhaps, to form a connection that will help them feel understood. Here are their stories.

ADHD

I am the mother of the patient. At first, I really thought that my son was just extra hyper and energetic compared to others because he would fidget with almost every item....

Asthma

I was diagnosed with asthma at a very early age (around 3 or 2 years old) so I do not know much about the proceedings of my diagnosis. Me and my younger brother have been asthmatic...

Breast Cancer

Leilani is my aunt. She’s my mom’s older sister. Back when I was about 7 years old, I didn't know she had cancer. I just noticed her hair because she was wearing a wig. I asked...

Cystic fibrosis

I have cystic fibrosis and because of that, I have an ovarian cyst from endometriosis-related fibrosis. I also had complications in my lungs because of many scars...

Diabetes

She is my cousin. We found out that she has diabetes during one of her regular check-ups, and I was saddened because she has down syndrome...